All times are in Eastern Time unless otherwise noted.
Bi-Weekly AAC State Policy Committee
This event is open to everyone! To RSVP, email [email protected]
AAC All Committee Meeting
Skill Building Session - How to Write an Effective Op-Ed. Add event to calendar Apple Google Office 365 Outlook Web Outlook Yahoo
Federal Legislation Sub-Committee Meeting
Please email Marlou Svenson at [email protected] to register.
Bi-Weekly AAC State Policy Committee
This event is open to everyone! To RSVP, email [email protected]
CHP Subcommittee Meeting
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CHP Subcommittee Meeting
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The Implications of Accelerated Approval of Gene Therapies
Session Description: The focus of the August 2023 Advocacy Grand Rounds will be on the recent accelerated approval of Sarepta's gene therapy drug, Elevidys, for Duchenne's muscular dystrophy. This drug was seemingly unilaterally decided by FDA CBER Director, Dr. Peter Marks despite the recommendation from his own staff to not approve the drug. Our AGR...
HJE Subcommittee Meeting
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HJE Subcommittee Meeting
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